The following links are resources that we feel can be very helpful to anybody who has an interest in organ transplant. You will find anything from organism mandating transplantation to important statistics and outcomes informations to where getting help for financial assistance with costly medications. No matter if it is kidney, liver, heart or lung transplant; everybody could use some help.
Websites of interest
UNOS is the organization mandated by the federal government to control and monitor organ transplants in the USA. www.unos.org
Donate Life America is a not-for-profit alliance of national organizations and state teams across the United States committed to increasing organ, eye and tissue donation. http://donatelife.net
Organism in charge of facilitating kidney transplant through a paired exchange program. Living donors that are incompatibles with the person with who they want to give a kidney are matched with other people in the country. It cuts the wait time by 5 and allows more patient to go without dialysis because of the kidney transplant.
If you are looking for an independent source of survival statistics for organ transplantation, this is the website to go. They also offer a kidney waiting time calculator which can help you find the best hospital for your kidney transplant.
Website of the Pulmonary Fibrosis association of Texas who has for goal of providing resources to people affected with the disease. One the life saving resource that the association is helping provide is oxygen. Most of the patients could not live without it.
Medication assistance
NeedyMeds is a website where patients can find helpful information about all kind of drugs and their assistance program. You can find coupons for drugs and medical supplies discount. Information about Medicare and Medicaid.
National Foundation for Transplants is an organization that support and assist transplant patients with fundraising activities. There is a link on the website where you can click to make a donation. You can also search patients in the database.
Website assisting patients with high cost prescription drugs.
More to come!